Well I have experienced quite a
journey to stay true to my heart. It's been a long road but I feel I
have found the right direction and along with it, where I can make a
mark on this world.
It all began in May of 2008 when I was diagnosed with idiopathic dilated cardiomyopathy.
At first I didn't understand the severity of this disease and expected
that I would take meds, get better and continue on the path we had
planned. Through an experience of heart failure and the implantation of
an ICD, Implantable Cardioverter Defibrillator, we began to understand that things will need to change.
I had been with Shaun for about 4
years prior to diagnosis. We bought a house together, adopted some
pets, and discussed our future. Three weeks after I was diagnosed with
heart disease, he proposed to me. The future in general became unclear,
but we knew one thing for sure, however long we had, we wanted to spend
that time together. He is my rock, my knight in shining armour. He has
made this disease easier to cope with and given me something to fight
for. At the time, I didn't understand what that really meant and how
true it would become.
So I was told that I would just
have to live with 20% left-sided heart function. I was not severe enough
to be added to the transplant list, although I was being followed be an
out-patient clinic. I had my ICD, affectionately named Ivan, and that
was the most important thing to prevent against sudden death, a
blunt comfort.
When 2009 began I planned my
wedding. I planned it all. It was so much fun. I wasn't in a condition
to work, as of yet, so I made this my job. I made my flowers, the cake,
the favours, the invitations, the thank-you cards, and organized
everything. We married in May of 2009 and the day was absolutely
beautiful. I married the man of my dreams. Committed my life to him in
front of all my dearest family and friends. As the night passed on, we
had dinner and began our speeches. Shaun and I decided to do our speech
first so we could relax for the others. Well Ivan was not happy with the
speech and decided to make his presence known. Two minutes into the
speech he fired three times. My new husband caught me before I fell to
the floor. I was taken to St. Mary's Hopsital in Kitchener, not knowing
that this hospital would later save my life.
The nurses and staff planned a
little party for us and our family in the hospital that night. We were
able to cut the cake, throw the bouquet and have a toast. They treated
me wonderfully and made the difficult experience a little better.
The summer of 2009 brought some
strange symptoms. Through about 3 months of abdominal pain and
difficulty eating it was determined that I was in SEVERE heart failure.
It was a nurse at St. Mary's that got me to see a doctor. My existing
cardiologist continuously told me it was a gastrointestinal issue, as
did ER doctors and surgeons. None-the-less, I got to the right people.
They treated me and determined my condition was more severe than their
facility could handle and they sent me to Toronto General Hospital to be
evaluated for transplant.
I was then approved on the
transplant list and experienced the fight of my life. Hooked up to about
15 IV's did nothing to improve my condition. I waited three days for a
heart to become available but I was not able to wait another day. The
doctors implanted the LVAD, a Left Ventricular Assist Device
to pump blood through my body since my heart was not able to do it
alone. This was life saving surgery and I feel it is my second chance at
life. It's purpose is a "bridge to transplant". I am still waiting for a
heart transplant.
I would like to make a change in
this world. I will share my experiences to promote organ and tissue
donation and blood donation. Everyone wants to know what they can do to
help, make a change, inform yourself and become an organ and tissue
donor.
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